19 Comments

  1. Still
    January 9, 2019 @ 2:22 pm

    I went on two courses of roaccutane when I was 26-27 years old. I haven't had vision loss bar from normal age related reading but I do wake up with red dry eyes and the eye mucous is much thicker than it should be. I keep drops with me at all times.
    It was great for over a decade.
    The worst side effect that started up around 15 years ago is I now get much deeper cystic acne on my face that I never had previously.
    It is incredibly painful as rock hard lumps take weeks to work their way to the surface, they get infected and it goes on.
    I have been dealing for over a decade with deep cysts that have created deep scarring from this and have a constant wound somewhere on my face from which eventually one or several rock hard white lumps the size of a pin head will eventually emerge.
    My skins healing process has been effected and I suspect the collagen production has also been effected.
    I still get small white heads but they are now the least of my problems.
    I avoided having children when I realized I was still having side effects.
    I am sitting here with a couple plasters on my face as I type.
    I have tried almost everything when it comes to diet and vitamins/minerals, I use minimal makeup and and only BB or CC creams at that.
     Of course they want to put me back on roaccutane! but I am 50 now and I really dont want to dry my skin to the point of looking 70 just to clear this up.
    I honestly dont know what to do?
    yes it effects my confidence, yes I always feel embarrassed and loathe photos, not a day goes by that I dont get a white head pimple or two, I avoid closeups and I am frightful of any further treatment in case it just makes things worse. I am afraid.

    Reply

  2. donkeyonchair
    January 9, 2019 @ 2:22 pm

    This is one of the most honest and kind videos I have seen on youtube. Thank you for helping and informing people with your honesty, you were exactly right about the effect acne has on quality of life and desperation. It is admirable to share your story openly and it helps people like me so much, thank you

    Reply

  3. TALKSiiCK
    January 9, 2019 @ 2:22 pm

    Is there anything we can do I was just told my eyes have no moisture at all and I can't even tolerate contacts in on gluten dairy free diet off all my psych meds and I really am fed up over this drug

    Reply

  4. Mayoncé
    January 9, 2019 @ 2:22 pm

    Can I stop accutane after 3 months? I do not want the permanent long term side affects

    Reply

  5. brittany K
    January 9, 2019 @ 2:22 pm

    So dramatic.. I took accutane last year and it was the only thing that worked for me. I guess it works different for everyone.

    Reply

  6. Wednesday's Child
    January 9, 2019 @ 2:22 pm

    Accutane ruined my eyes. I have severe dry eyes for 30 years due to Accutane. I am not on restasis and have relief. I have turned into a complete skeptic. I don't believe a lot of what doctors say. I had blanket acne and was allergic to topical medicines. I would have lived with it had I known of this awful disaster. Don't take it drug ruines your oil glands in your eyes. Contacts are bad for your eyes anyways. I wouldn't do lasik and all that horrible stuff either.

    Reply

  7. Nenonxo
    January 9, 2019 @ 2:22 pm

    you remind me of joan rivers so much

    Reply

  8. vvdv
    January 9, 2019 @ 2:22 pm

    fk the pharma companies.

    Reply

  9. James Farrell
    January 9, 2019 @ 2:22 pm

    I'm still healthy and sure my skin may be good, but I have had severe consequences in regards to stability and my mental health. Please be very careful before taking this drug; I wish I knew more when I took it but now I just have to make best of the circumstances. I am currently awaiting checks and test in regards to my hormones and also to see whether I have a chemical imbalance that could be linked and caused by Accutane that I took when I was 14. All I can say is be strong and hang in there. I feel that I have and still have life long problems and Accutane encouraged them to get worse. All you can do is be mind strong 🙂 Good days & bad. Anyone who wishes to talk on the matter is welcome, message me.

    Reply

  10. Kim Possible
    January 9, 2019 @ 2:22 pm

    Whats an optha whatever… Im over 40. Seen an eye dr one time in my life, my eyes WERE great. And a nice pretty green too… I cant tell you what they look like now- cant see yhem , but By God i feel the pain. Not only in my eyes though. From head to toes. Swear iI.

    Still though, it was a choice i Made. And the options two evils. Neither lesser than cpunterpart killer- gg

    Reply

  11. Kim Possible
    January 9, 2019 @ 2:22 pm

    You say things don't have to be so scary, then you share more negativity. Look here, i got a lot of issues too. Been on accutane i feel too long. However, I dont want to die from a horrifying skin disorder, nearly last ditch effort.. Accutane,
    One thing OMG I NEED TO EMPHASIZE THIS TO ANYONE ON ACCUTANE. TAKE YOUR PRESCRIBED DOSE TO THE HOUR, MINUTE IF POSSIBLE. AND TAKE THE MEDICINE …WITH FOOD. UNLESS YOU WANT TO BE TOOTHLESS!
    No bs,
    Sweety you ttly disregarded Drs. instructions. You made your own rules. You cant do that not with Accutane! I know. Believe me.. Believe me, now ill check back. Id like to actually visit with you, you seem absolutely inconsistent. Bless you heart.
    Well i have my first emergency -apt with opthalogomogisg in less than an hour. Idk how I'm gonna get there. I feel extremely uptight driving cuz i cant see as well not even close. . Last thing i want is to cause injury to another person. Sheeesh. I gotta ho

    Reply

  12. Scare Crow
    January 9, 2019 @ 2:22 pm

    I'm dealing with the dry eyes 3 months after taking tane. It was my 2nd round. I took it when i was 16 and maybe its because i was so young but i didnt notice ANy side effects. I just remember bringing chap stick wherever i went. BUt thats it. Now i'm 28 and the side effects were way more noticeable. I too have to pry my eyes open every morning. Its not fun. But i did have cystic acne and so the trade off was pretty 50/50 with me. I'll deal with the eyes rather than having to deal with the unknown of how many and how big will the zits be the next morning.

    Reply

  13. Kat T
    January 9, 2019 @ 2:22 pm

    I took accutane when I was in my late teens and it worked perfectly for me.everyones different. Unfortunately you have to be very careful with this drug and stop taking it if it affects you badly.

    Reply

  14. graphicartdude
    January 9, 2019 @ 2:22 pm

    Does anyone remember a few years back, there were folks suing the company who made Accutane…some folks getting large settlements for serious gastro intestinal ailments. I too experienced (and still do experience) chronic pain since taking that drug. I had to have part of my intestine removed and continue to have health issues.

    My question is…has anyone had any luck pursuing compensation from this evil company for ruining their life? I was told by an attorney who did class action lawsuits, that I had to be specifically diagnosed with IBS or Chrones to be considered. I thought that was bullshit because I've had doctors tell me that IBS is just a vague term.

    Reply

  15. TALKSiiCK
    January 9, 2019 @ 2:22 pm

    I relate to this on the dry eyesHowever i have dry scalp eyes nose skin mouth No auto immune No answersSkin rashes facial flushing anxiety depression maybe 5 hours sleep with medsEyes stuck together so badAnd purple bags and acne coming backAnd i eat healthy drink waterHave a fiancee im 26 and i asked her to marry me cause i was happy alive summerThis was my second summer i had i was housebound after two courses of ACCUPAIN
    TOOK IT 18 and then at 19Spent 19-23 in a house
    Wasnt worth it MY HONEST OPINION
    I HAD MILD RESISTANT ACNENO OIL AT ALL ANYMORE ANYWHERE

    PLEASE B CAREFUL

    THIS DRUG DOES WORKBUT MINE CAME BACK AND NOW I HAVE MORE TO DEAL WITH THAN JUST ACNEWHICH DONT GET ME WRONG ACNE SUCKS BUT THESE SYMPTOMS ARE HORRIBLEWISH I COULD FIX ME AND ALL U WHO SUFFER FROM SIDE EFFECTS FROM THIS POISON
    DEF SIGNED MY SOUL TO THE DEVIL WHEN I SIGNED THE Papers for this "miracle drug"

    Reply

  16. InevitablePast
    January 9, 2019 @ 2:22 pm

    Thanks for the video. Accutane demolished my health as well. I'm only 20 years old. Have you tried eating a lot of vitamin A (liver is a great source as well as cod liver oil). Accutane depletes it and vit A is highly involved with your eye health. Not sure if it relates to eye moisture but it's worth a shot. I wouldn't mess with supplemental vit A. Try to only get it through food. And beta-carotene isn't vit A. I'm talking about actual retinol. Hope you get relief one day.

    Reply

  17. Matthew Fucoloro
    January 9, 2019 @ 2:22 pm

    Thank you for making this. The drugged ruined my entire life from the age of 15. i am 30, look 16 and feel 80

    Reply

  18. James Farrell
    January 9, 2019 @ 2:22 pm

    Couldnt agree more. Accutane ruined my life.

    Reply

  19. Angela Forbes
    January 9, 2019 @ 2:22 pm

    Hi, thanks for posting your video re side effects of that horrible acne treatment.  Can I just say that I had dry eyes for 5 years and managed to cure it by complete accident.  Basically, I was low on the real Vitamin A.  The other thing I was low on was zinc and vitamin E.  I think that probably what happened to you was, you had your darling twins and all your stores of vitamin A were used up.  Unpastuerised fermented fish oil by Green Pastures saved my eyesight.  Pregnancy significantly depletes all the fat soluble vitamins, because in nature the baby always comes first.  Organic non-toxic vitamin A from fish oil is vital to eyesight and mucous membranes of eyes etc.  Accutane was synthetic vitamin A.  Clearly it played havoc with the whole process of vitamin A uptake.  I honestly think you can cure yourself of the dry eye problem.  

    Reply

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